Our daughter’s EEG was completely normal. Her MRI looked perfect. She passed her neuro exam with flying colors. All excellent news. Except we still don’t know why she is having seizures.
Next step is a 48-hour continuous at-home EEG, which unfortunately we weren’t able to schedule til 10 days from now. After that we were informed that it would take 2-3 weeks for the doc to find time to read the thing. Eek. Almost a month til we know anything??
The doctor asked us to try to videotape an ‘event’ if we can, to help him with a diagnosis. We of course want to give the doctor every tool he needs to figure things out, whether it be a few seconds of video, or two days on EEG. But the video idea didn’t thrill our daughter and I can’t say I blame her. So I don’t know about that…
The very best news is that today the doctor was able to rule out a few of the biggest baddest possibilities, such as a growth on her brain, which has been a huge worry on my heart. So that is wonderful, welcome news.
But for now I guess we are just stuck living with the seizures. The doctor said that no way will he even consider medicating until he knows more about what we’re dealing with. Thankfully she had only two today, plus a few little twinges that felt threatening but didn’t get full-blown. We are hoping this week was just some strange thing and maybe by 10 days from now things will be totally back to normal. But of course we don’t know what will happen.
Please pray that our daughter will stay in good spirits, and that her seizures will diminish and go away. Thank you so much for your support. I truly have felt your prayers. I will keep you posted as we continue to seek out answers and healing.