This one is guaranteed to be a disorganized jumble…
We got home yesterday after doctor diagnosed our 12 yo with idiopathic seizures– meaning he didn’t know what caused them. I told him I was afraid he was going to say that but he said actually that is the best kind to have because that means our daughter doesn’t have anything obviously wrong with her except for the fact that her brain electricity is misfiring at times.
Doc gave her a greater than 50% chance of outgrowing this, and started her on Keppra, which he said has very few side effects and works really well for lots of kids. Once she has gone two years without seizures, we can talk about gradually weaning her off. As a dedicated google junky, I of course had to look the drug up. Depending on who you talk to it is either a wonder drug or one that makes people into moody zombies. Lovely. Decided to trust
the doc God and jump in, because the alternative (2-6 seizures a day) is not pretty. And we can always play with drugs to find something else if this doesn’t work for her.
By the end of Monday our weekend of little sleep in the hospital plus the loading dose of medication was getting to her. We had some rather unhappy moments before I summarily sent her to sleep it off. And I was feeling very down and overwhelmed myself. The last thing a moody 12 year old needs is a drug that makes her moodier. Eek, eeek, eeek.
I then went off to Walmart to get her meds, only to discover that a 60-day supply costs– get this– $300!!!! Just incredibly awful. Got home and very soon after sent MYSELF to bed to sleep it off.
And, glory be– we made it through the entire night with zero seizures. For the first time in a week.
This morning I was catching up with bloggy friends and found this post from Carrien. So here are the things I am thankful for:
1. That my daughter made it through the night with zero seizures.
2. That our insurance makes it possible for us to pay only $20 for $300 worth of medicine.
3. That our daughter is here in America where her seizures can be treated.
4. That our other children did OK while I was gone over the weekend.
5. That God loves my kids more that I do and He is able to make my feeble efforts enough. Even when dealing with a certain cranky, hormonal, medicated 12 year old.
And here are the things I am praying for (in case you want to help me out in that department.)
1. That my daughter’s meds will stop her seizures without scary side effects.
2. That yesterday’s crankiness will turn out to be an abberation rather than the new norm on medication.
3. That I will have grace to deal with any less-than-sweet attitude. From anyone, not just her. Y’all may be familiar with the way kids decide to melt down all over the place when mom has been away for a few days.
4. That my family will be well and happy while I am at Blogher this weekend, and not melt down AGAIN after I come home. I am almost never away from my family, and so 4 overnights in 8 days time is highly unusual and won’t be super-easy for anyone. I am especially praying my wonderful hubby will have a smooth and peaceful time. I feel a little selfish at still planning to go, esp. after events in the past few days. But hubby has lots of support at home. And selfish or not, I am SO READY to GO!